With every morsel of gratitude, with every cell celebrating, I want to tell you: I have a kidney coming! March 27th is the day. Our dear friend, Katy Mathews, is the donor. I also want to tell you, I have felt so strange since learning this news....

A dear friend is currently being worked up to see if they are a compatible match.  What we believe to be her final tests were completed yesterday and the results should come in over the next few days.  So, cross your fingers!   The challenge of patience...

I'll be reading from this blog on Friday night at the Kleinart James Center for the Arts with Elizabeth Lesser. The talk is called "THROUGH THE STORM: DEVELOPING RESILIENCE, TRUST AND LOVE IN DIFFICULT TIMES".   We went on WKNY yesterday to promote the event, Jimmy Buff...

I have nothing to say today. Nothing wise or smart or compassionate. I love the feedback I have received. It's honestly wonderful to hear that the challenges that Venetia and I face are reaching people's hearts. Here is what I want: I want my body to snap-back. I...

I lay in dialysis, trying to sleep. I hear four TVs (each playing something different), three conversations, someone coughing, a disposal bin is being kicked across the floor, the dialysis machines all merge together, something is being unwrapped somewhere, beeping and whirring, and a sea of...

Good morning, In Chinese Medicine, the Kidneys are part of the Water element (partnered with the Bladder). The associated color is black (or blue/black). The season is Winter, the taste is salty, the emotion is fear, the sound is groaning.  The Water element opens to the...

About a week ago, Venetia and I were amidst our evening ritual with our girls: dinner, bath, bed. We were all hovering around the running bath, I think Celeste had already gotten in, I was halfway through a negotiation with Aviva for her to follow...